I read two great books this weekend, both about brain tumor survivors: "I Had Brain Surgery - What's Your Excuse" and "Curve Ball - When Life Throws You a Brain Tumor". I thoroughly enjoyed both of them - the women who wrote them displayed great humor, which I think is mandatory in the brain tumor business. Both authors talked about how they discovered their brain tumors. In both cases, they had missed or ignored early signs. Which got me to thinking about my early warning signs - yes, the ones I ignored or failed to recognize...
Probably the earliest clue I had was a good two years before I was diagnosed. I had decided that I wanted to include yoga classes in my weekly quest to do things for myself. And it really pissed me off that I was the only one in the class who, no matter what, could not do a tree pose. It didn't matter how much I flailed around, there was just no standing peacefully on one foot whilst the other rested on the opposing knee. Nope, not gonna happen. I remember thinking at the time "Jeez, I'm barely 50 and my balance is already starting to go."
Little did I know that this was the first sign that something had invaded my head and was getting cozy with my auditory nerve. Huh.
For at least a year before diagnosis, I was noticing a decline in the hearing on my right side. At some point, I switched my headset from my right to my left ear. And I ignored the occasional "swooshing" noise in my right ear. Well, my dad had lost the hearing in one of his ears when he was in his 30's - I figured it was some hereditary thing. Best to just ignore it. It wasn't until Willie locked himself out of the house one morning and activated the burglar alarm when trying to re-enter that I got worried. You see, the burglar alarm was going off for several minutes and I never heard it. Granted, I was sleeping on my left side with my faulty ear facing the world. But still... I mean, have you HEARD those damned things?? They are like air raid warnings. Yep, that kinda freaked me out. I made an appointment with an audiologist that very day fully expecting that I would be fitted for a hearing aid. Instead, I was fitted for a fat graft and a titanium plate. Talk about getting the fuzzy end of the damned lolly pop!
Never crossed my mind that I had a tumor growing in my cranial cavity! Now, I don't want to scare anyone out there who may be suffering balance and/or asymmetrical hearing loss ... I'm just saying you may want to pay attention.
You know that expression that when you are a hammer, every problem looks like a nail? Well, when you've had a brain tumor, every symptom looks like a cranial invader. I think everyone in my family rushed to see an audiologist after my little adventure. (I'm happy to say, not a brain tumor in the bunch!)
I had ALL the symptoms I could have had (except keeling over dead!) and just never got it - I wasn't in denial or anything...as I have said many times - just young, naive and BLOND!!
ReplyDeleteAdd to that most of us never imagined, on our worst day, that we'd end up with a BRAIN tumor!! (And, you're still one of the smartest women I know - blond or not!)
ReplyDeleteha! My first symptom was about 15 years earlier, a short series of vertigo attacks, which the doc couldn't pin down to anything. later, the hearing started going, same doc thought it was age related. 2 year of me pestering, and I finally get to see the specialist. By that time I had tinnitus, could sleep through any house alarm or fire alarm (I did) and my balance had well recovered, thank you very much. :) Don't know about you, but I knew I had a tumour, I just knew it, sensed it, little voice kept telling me. Call me paranoid or blond!
ReplyDeleteAmazing, Lorenzo. I realize how lucky I was to get a doctor who recognized the symptoms and wasted no time in ordering an MRI. Interesting - I never even thought about a tumour! I was really thinking that I had genetic hearing loss and was feeling put out that I might have to get a hearing aid!! So, as I sat in the ENT's office and looked as his sad face and listed to those fateful words "You've got a brain tumour" I was shocked beyond belief! I remembering asking if it was cancerous, then asking him to write down the official name of it, then asking if he could refer me to someone to talk about radiation or maybe surgery. Boy, did I have a lot to learn!!
ReplyDeleteand learn you did!
ReplyDeleteFor some reason I always thought that loosing one's hearing on one side only wasn't normal age related stuff, certainly not at 42! All I remember when I was told was a huge sense of relief, it was something! Now I could tackle it. Grrrr... lol
And here we are, laughing and talking about. Isn't it great? Wonderful life really.